The Muir Maxwell Trust

The Muir Maxwell Trust is the epilepsy Trust for children and families. It was established by Ann and Jonny Maxwell in 2003 and is named after their own son Muir, now 18 years old, who has epilepsy. Muir has a severe form of epilepsy called Dravet Syndrome which began in infancy. He had his first seizure when he was just four months old. When he was 9 months old he suffered a life threatening seizure lasting a long time - known as status epilepticus. There were many more to follow. That early legacy of aggressive seizures has left Muir with profound and multiple learning disabilities. He will never work, he will never marry, he will never have children of his own and he needs care 24/7, including personal care. What do we do? We work from an open plan office in Musselburgh, a town on the outside of Edinburgh. Our small team includes Ann-Marie Nelson, our Family Liaison Manager who networks with families and the epilepsy nurses who provide the front line of care; Anna Smaill our part-time administrator and book keeper and Ann Maxwell our Co- Founder and full- time volunteer fundraiser. The team are supported by our board of trustees who are business people and parents of children with epilepsy. Together they bring a wealth of expertise to the Trust.