Rare Patient Voice

Rare Patient Voice, LLC provides patients with rare diseases and their caregivers with an opportunity to voice their opinions through surveys and interviews to improve medical products and services. Participation with Rare Patient Voice is completely voluntary. Rare Patient Voice will never share patient data without consent. Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years of experience in marketing research, and more than 20 years in healthcare marketing research.